Raising with the village

#4- Grace - When your child stops growing

Raising with the Village Season 1 Episode 4

In this episode, Grace shares her family’s journey through discovering that both of her young children have growth hormone deficiency — from spotting early signs, to seeking answers when her instincts told her something wasn’t right, to navigating diagnosis, testing, treatment and life on daily injections.

It’s a story about persistence, parental intuition, advocating for your children, and the enormous difference early diagnosis can make.

💬 In this episode:

  • Spotting the first signs that her son’s growth had stalled — and why she trusted her instincts
  • The long process of ruling out allergies, food intolerances and “catch-down growth”
  • How she pushed for referrals and why private healthcare accelerated the diagnosis
  • What happens during endocrine testing: IGF-1 blood tests, stimulation tests, and MRIs
  • Understanding growth hormone deficiency and why early diagnosis matters
  • Starting treatment: daily injections, bedtime routines, and the emotional side for young children
  • Realising her daughter also had the same condition — and how symptoms can look different
  • The impact of treatment: energy levels, confidence, muscle strength and rapid catch-up growth
  • Finding community through the Child Growth Foundation
  • Grace’s advice for parents concerned about their child’s centile chart or growth trajectory

🩺 Useful Resources:

💛 Raising with the Village

This podcast is about real parents sharing real stories — because no one should feel alone in parenthood.
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🌐 Website: https://raisingwith.co.uk/
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